Wednesday, February 6, 2008

Up to Primary Children's Hospital we go


Up to this point I've kind of kept a closed lip on some of the things that Nate's been going through. But seeing that i'm using this as a Journal and kind of scrapbooking (niether of which I'm really good at) I thought that I would start adding this "adventure". Last July we started to hear rumors that Jake would be getting deployed, while fishing Nate accidently got a fishhook stuck in his hand while picking up rocks and throwing them into the lake (really deep that Jake had to push it through to the other side) and a week later had a propane tank explode while camping and Nate miracously walked away with burns on only his right hand and singed hair. I mention this because it was after these three incidents that Nate started to have involuntary twitches, starting out as just a shoulder shrug, and when school started in mid August it had gotten so bad that it looked like he was having seizures, he couldnt control his body and was having a difficult time even trying to take a drink from a cup. You could imagine how hard it's been to make friends at a new school . All they know about Nate is that he's the new kid who can't sit in his chair and who's arms and legs flail about all day long. To put frosting on the cake for the kid, he's got a few boys in the other class that have been bullying him. (once I found out about them I rose HELL and made sure that those kids parents were called and told what they were saying to my son) We've been trying to figure stuff out, and trying to see what works, so far we've been doing the token system (Nate refused to do any work at school, and homework was a nightmare) and it's made a huge difference in his wanting to do his work to get rewards, but we are still puzzled over the "tics" and we want to make sure he's not having seizures. He's on some medicines that have helped "calm" them down, but it's like putting a bandaid to leaky faucet, the problem is still there. So up to Primarys we go. We will be going to a neurologist just to make sure its not something on that end, and if it is well, we will at least be in going in the first steps in the right direction to helping him.

11 comments:

Miss Jen said...

Primary's is awesome! If you will be there more than a day let me know. I know where all the good stuff is! (Showers, computers, etc.) You really can't ask for a better level of care. They will take super good care of you! Let us know how it goes.

Miss Jen said...

Primary's is awesome! If you will be there more than a day let me know. I know where all the good stuff is! (Showers, computers, etc.) You really can't ask for a better level of care. They will take super good care of you! Let us know how it goes.

The Holloways said...

Good luck! It is tough to not know what is going on. My daughter has had a few seizures and they are quite scary, so I can't imagine a consant issue--
I will be thinking of you! Hope everything turns out for the best!

Nate and Marcie said...

I hope all goes well for him. He's such a cute kid, I can't believe how mean kids can be to eachother. I will keep him in my prayers.

girlsmama said...

We will have you guys in our prayers. Let us know if you need to drop everyone else off for appointments! You're doing the best thing a Mom can do by seeking out the top care.

Jenny said...

Big hugs, Vanessa! I hope the doctors are able to figure out what to do to help Nate. He is such a trooper! Let me know if you need anything while you're up here, I'm not too far away!

Laura said...

Hey girl, I hope they figure out the source of these problems. Nate is such a sweetheart---no kid deserves to go through all that. Our prayers are with your family. Love, Laura

Jenny said...

It will be a relief to know what's going on for sure. I didn't notice ANYTHING on Sunday...only how sweet he is and how much Cora misses having him close. So you want to visit with us while you are here?

Bonnie said...

Vanessa, it is so hard to worry about your little ones. I know we have had our share of worry this year with Hazel. I echo what Jen said though, you are going to the right place. They are absolutely amazing at Primary's and you will feel great support there. We spent 19 days there in Sept-Oct they have the best doctors and nurses. They will get to the bottom of the problem. I will be praying for you all.

Bonnie (Jen's mom)

Kim said...

Primary Childrens is the place that we finally found real answers when our kids had health concerns. It is just an awesome place and what a blessing that it is so close. Take care!

Christensons said...

thank you all for the support, today went great. it's true everything you said about the place! everyone was so nice and helpful and willing to get to the bottom of things, they took their time and made nate feel so important and the way they tested him and talked with him ( i knew what they were doing, he was just having a good time) all in all we walked away with some answers but i'm still waiting to see what the EEG says about if he is actually having siezures or not. i'll let you all know when i know! thank you once again for your support!

and bonnie you dont have to write (jen's mom) I KNOW WHO YOU ARE! I'm a fan!!!

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